Wednesday, May 20, 2015

Are We There Yet?!

It's been 4 weeks since the last post.  I'm having a really hard time writing this year mostly because we aren't doing as much fun stuff.  I sure miss Amanda and Adeline! We are wrapping up week 6 tomorrow.  Which leaves us 7 more weeks to go!  I think I can, I think I can, I think I can...

About 3 weeks ago we went to the Center for Puppetry Arts and saw Dr. Bigelow's Tall Tales Puppet Show featuring Paul Bunyan.  It definitely wasn't as good as The Cat in the Hat. 

Monkey Joe's is still his favorite hang out!

Last week Abby came down with us.  We went bowling on Wednesday.  I saw a big difference in Drew from bowling last year.  Last year he would push the ball off the ramp and run and sit back down.  Pretty much couldn't care less.  This year he started off using the ramp and after a couple turns wanted to do it himself.  He would watch the ball go down the alley saying come on, come on.  It was so awesome to watch!  Of course that lasted about a game and a half.  We signed up for Kids Bowl Free. Kids get 2 free games every day all summer!!  If you haven't done it, you should.  Anyway, when we checked in the guy gave us another free game.  By the third game he was done!  Then it was on to Brain Balance, Monkey Joe's and an evening swim!

 
 
Our daily routine pretty much consists of morning brain games, a swim at the Y, BB, Monkey Joe's, an evening swim and more brain games!

This year seems to be especially hard on me.  I do not handle stress very well.  It turns me into an emotional wreck.  Right now I have emotional bi-polar disease (I just made that up by the way).  One minute I'm thinking I can do this and the next I'm thinking I don't what the heck I'm doing!  I'm crying all the time.  A friend asked how it was going in Sunday School this past Sunday and I couldn't even answer her.  I just started crying and pretty much cried for the next couple of hours.  It is so hard to watch him want to play with other kids but not understand that they don't want to just chase him around.  I've seen both sides of tolerance in the past two days.  A mom at Monkey Joe's kept telling Drew that boys are supposed to chase girls because he kept telling the girls to chase him.  I went over and told the mom that he had Autism and had no idea what she was saying to him.  She then asked the girls if they knew what Autism was and they both said not really.  So the mom asked me to explain it to them.  Then she asked them to go play with him.  The next day a couple were playing on an iPad while their kids were playing at Monkey Joe's and Drew was looking over their shoulder.  I told him to go play and the man said he's ok.  I told him that he is not supposed to have screen time.  A little while later he came over to me and basically told me that he hoped he didn't upset me for saying that Drew was ok when I told him to go play.  I really appreciated that.  And then the polar opposite at the hotel.  Last night I took Drew down there for a swim after dinner.  A man was down there with 2 girls.  In usual Drew fashion he heads right for them.  They don't give him the time of day.  I tell him to go swim somewhere else.  The pool isn't very big so that is kind of hard to do.  The dad doesn't utter a peep.  Doesn't encourage the girls to play with Drew, doesn't say or do anything except act like an ass!  And the same thing happened tonight!!  Those of you that know me, know that I can only handle so much of that kind of stuff before I snap!  My hope is that they will be gone when we come back next week.  

On a positive note, Drew had a great day today!  He got a star in the sensory motor room and clipped up to outstanding on his behavior chart in the cognitive room.  

I will try to post more often (I know, I know, I say that all the time).  All day long I think, oh I should put that in the blog.  And by the time Drew goes to bed I am mentally drained and just can't come up with the words!

Next week is a three day week...woot, woot!!  I'm looking forward to being home for an extra day. 

If you would like to get notifications when there is a new blog post, you can sign up at the top right of the page.  I've also added the link to the GoFundMe page Taylor set up for Drew on the right side of the page.  You should at least go read what she wrote...it will make you cry.

We really appreciate everyone's love and support.  Please keep praying too!

Until Next Time
 

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